Many
thanks to everyone who contributed to this newsletter. A
special thanks goes to Dean Beadle who we hope will be writing a regular column
for us. Dean is an autistic sixth-former who is currently giving motivational
speeches across the UK on the subject". If you would like to send
an article relating to special needs for the next issue, just send an e-mail
or call 020 7729 2200
SNAP Childcare 91-93 Great Eastern St London EC2A 3HZ
Tel: 020
7729 2200 Fax: 020 7729 0022 E-mail: info@snapchildcare.co.uk
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Look On The Bright Side Dean
Beadle
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Laughter. Believe
me this is one of the best ways to cope with Autism (in my case Asperger's Syndrome)
for both parents and carers as well as the special needs child themselves. Learning
to laugh at myself was a massive challenge for me. I'd always been a very serious
child and took myself very seriously indeed.
I struggled to understand
why somebody would laugh at your mishaps. I just assumed that it was other people
being nasty. I was far too sensitive for my own good. This all changed when
I reached secondary school. My Learning Support Assistant Mrs Clark could see
how defensive I was and made a determined effort to make me see the funny side
of the silly little mistakes that I made in my day to day life. She knew that
if I could learn to laugh at myself then I'd be a much more positive and light-hearted
person. She was right of course, and before long we could laugh together about
each others mishaps. This was a massive step for me.
Fast forward five
years. Yesterday 100 people laughed at my mishaps and I loved it. I was in Edinburgh
giving a speech about my experiences with Asperger's Syndrome, and I told them
exactly what I'm telling you- Laughter provides an incredible respite to the downsides
of looking after a special needs child. Especially if you can learn to laugh together.
Dean Beadle March
2007 (Photo by Luke Carter) |
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Special Children's Day
at London Zoo | Saturday
10th June 2006 We would like
to extend an invitation to children with special needs and their families to our
annual fun day at the Zoo. We know a day out can be an expensive occasion so we
are pleased to be able to offer admission of a reduced rate for children and young
adults with special needs, and their families. If you would like more booking
forms or further details, please contact: Education Administrator in the Education
Department on 020 7449 6551. Highlights
include:
New walk-through squirrel monkey exhibit
New walk-through Aviary of colourful African birds
Gorilla Kingdom and the Rainforest Lookout
Animals in Action - live animal display
Komodo Dragon
Animals
in Action - live animal display
British Sign Language Interpretation for all events 
A
reduced rate of admission is available - for pre-booked tickets ONLY. For
full details, booking forms and ticket prices, please contact Education Administrator
on 020 7449 6551 or e-mail: education.admin@zsl.org
Children under 3 years no charge
Children 3 - 18 years £6
Adults £10
Carer
(essential only)* free (maximum one per family)
*essential carers,
in this instance are those required to guide a child with sight impairment or
autism, or to push a wheelchair. We hope you will understand that, as a charity,
the Zoo is not able to offer free carers for all children.
www.londonzoo.co.uk
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The
Foundation for Conductive Education |
Conductive Education (CE) is a
form of special rehabilitation developed by the Hungarian physician, András
Peto. Its aim is to help children and adults with motor disorders learn to overcome
problems of movement as a way of enabling them to live more active and independent
lives. CE is particularly effective for those with cerebral palsy, dyspraxia,
Parkinson's, stroke, multiple sclerosis and head injury. The
successful practice of CE relies on specialised professionals called 'conductors'
who are trained to view medical conditions as problems of learning. In practice
this means that the focus is on teaching the person 'how' to achieve control over
movements rather than seeing problems as an inevitable part of the condition.
The National Institute of Conductive
Education (NICE) in Moseley Birmingham was set up by the Foundation for CE in
1986 as a centre of excellence and provides a range of full and part time programmes
for people of all ages. The Parent and Child service is for families and their
very young children (aged birth to 3 years) with cerebral palsy and other neurological
disorders. The Parent and Child service aims to enable parents, carers and family
members to gain a greater understanding of how cerebral palsy affects their child
and to help them to encourage their child to achieve greater independence.
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The
Foundation for Conductive Education (Cont) |
The service aims to provide a
comprehensive early years education which is appropriate to the age, ability and
needs of the children and leads to the development of motor, social and educational
skills. Alongside the education for the child we provide support and advice to
their families and work with associated professionals to achieve the best possible
outcome for each child. The
Parent and Child service offers continuous placement for children aged from birth
to three years. The duration of the groups is one-and-a-half to two hours, and
groups can be attended once or twice a week depending on the age and ability of
the child. In some cases individual sessions may be offered, often as a prerequisite
to group work. For families
travelling from further afield, including abroad, we are also able to provide
fixed-term groups of three weeks duration. Attendance in these groups is for one-and-a-half
to two hours per day Monday to Friday.

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The
Foundation for Conductive Education (Cont) | 
Last
year we were able to help 108 children and their families to achieve a better
quality of life. Thanks to the generous support from Zurich Cares part of Zurich
Financial Services and other charitable trusts, this service is free to UK residents.
In
addition to this NICE also offers a range of further services for children, young
people and adults:
Early Intervention: 3-7 years
Primary School: 5-11 years
Weekly sessions: 7-11 years
Adult sessions for those with Parkinson's, multiple sclerosis, stroke, cerebral
palsy and acquired head injury.
For
more information call: 0121 449 1569
or see: www.conductive-education.org.uk
Click
here
to see the current Foundations Newsletter |
Pounds
for Parents North West | GREATER
MANCHESTER PARENTS TO BENEFIT FROM FUNDING BOOSTA
project in Greater Manchester has been granted £30,000 funding from The
ScottishPower Energy People Trust to help families with disabled children access
the benefits they are entitled to. Contact
a Family has used the Trust's £30,000 funding to set up a project called
Pounds for Parents North West, and although only established in October this year,
it has already assisted over 250 parents and children. With
Carbon Monoxide Awareness Week ahead (beginning 4th December), families in the
Greater Manchester area will also benefit from 300 Carbon Monoxide Detectors,
donated through a scheme funded entirely by ScottishPower customers. Pounds
for Parents North West is a two-year long project which aims to target 5,000 homes
in the Manchester area. The
funding provided by the Trust has been used to employ a development officer, Jo
Palmer, who works with parents of disabled children. Jo's
job involves explaining to parents, jargon-free, about Government benefits they
are entitled to through workshops, parent groups, telephone, face-to-face and
e-mail enquiries. In addition
to the funding for the post, ScottishPower representatives also presented the
300 Carbon Monoxide Detectors to be distributed to families. All
profits that ScottishPower made through previous sales of Carbon Monoxide Detectors
were ploughed back into buying more detectors and so thanks to ScottishPower customers,
the Pounds for Parents project will now benefit from these. Jill
Harrison, Director of External Affairs at Contact a Family said: "We're extremely
grateful for the funding provided by The ScottishPower Energy People Trust and
the Carbon Monoxide Detectors.
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Pounds
for Parents North West (Cont) |

"Not
only will families increase their income levels - and that's vital to families
with disabled children as they often have to manage on only one wage - but they'll
have great peace of mind, knowing that any potentially lethal gases will be detected
immediately and they will be safe in their own home."
The ScottishPower
Energy People Trust was created in November 2005 to fund not-for-profit organisations
that help vulnerable people including families, young people, the disabled and
the elderly who need to spend more than 10% of their income on energy bills and
suffer from fuel poverty.
Ann
Loughrey, ScottishPower's Head of External Business and Community Relations and
The ScottishPower Energy People Trust's Company Secretary said: "We are delighted
to be able assist the Pounds for Parents North West project. "Research
has shown that many families with disabled children are not claiming all the Government
benefits they are entitled to and are missing out on vital extra income. "Hopefully,
with the assistance of Pounds for Parents North West, many families in the Manchester
area will not lose out on any income, therefore avoiding kids growing up in fuel
poverty." For more information
about the project please contact JO Palmer, on 0161 743 0700 or e-mail northwest.office@cafamily.org.uk.
For information on The ScottishPower
Energy People Trust visit www.energypeopletrust.co.uk | Each
year Nannytax (a payroll support service for people who employ nannies) conducts
a survey amongst nanny agencies to get an up to date view of nanny's wages.
To
see this years figures, please click on their logo below.
Red
Nose day Friday 16th March |
| It's
that time of year again to put on those red noses! | Since
1985, the charity Comic Relief/Red Nose Day has raised over £425 million
- 60% of the money raised helps to give people living in desperate poverty across
Africa a better chance in life and 40% helps disadvantaged people and communities
across the UK turn their lives around.
One
of the UK charities is The Princess Royal Trust for Carers who help children who
take on the responsibilities inappropriate to their age caring for a physically
disabled parent and perhaps siblings. See
below for details, including how you can get involved.
Red
Nose Day
Young Carers The
Princess Royal Trust for Carers
(For those not wishing to don a red
nose, you could always try the T-shirts!)
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New improvements
to the PARIS directory
| The
PARIS (Public Autism Resource and Information Service) directory is changing.
From the 6th of March you will see a number of improvements which will benefit
users of the directory and the services listed within it.
Firstly
the name will change from PARIS to the Autism Services Directory to better clarify
its purpose. Visitors who access the new directory through the National Autistic
Society (NAS) website will find it much easier to find under the Autism
Information and Support section of the newly redesigned website. With over
2.4 million visitors to the NAS website last year this should lead to an increase
in people visiting the directory and finding the details of your service.
For
those accessing the directory directly, the current web address www.info.autism.org.uk
will continue and the new web addresses will be www.autismdirectory.org.uk
and
www.autism.org.uk/autismdirectory.
The homepage and the browse function of the Autism Services Directory will
also be updated and improved to make it even easier for visitors to find the services
they are looking for.
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New improvements to
the PARIS directory (Cont)
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Signpost
new online service from the NAS
Also launching on the 6th of March,
Signpost is a new online service providing information on autism and services
which is tailored to an individual's needs. Users
will be able to enter basic details about themselves, or the person they care
for, and be presented with personalised information relevant to their needs according
to age, diagnosis and where they live. Signpost will draw on relevant information
stored on the NAS website, in the Autism Services Directory and also new material
written specifically for Signpost.
This
new service will be accessible through the NAS website or directly via the web
address www.autism.org.uk/signpost
The
NAS information team and I hope you find the improvements to the directory beneficial.
If you have any queries or questions then please contact us at directory@nas.org.uk
| Erica
Marks and her family has been known to SNAP practically since we started - many
a carer has enjoyed their time looking after her son Benji who has cerebral palsy.
Somehow Erica (who has three other children!) has found the time to train for
this years marathon race on the 22nd April. 
Erica's
chosen charity is Whizz
Kidz who provide customised mobility equipment for children with physical
disabilities. SNAP
are very happy to support Erica and hope that you might too! Please
click here for details of how
to donate to this worthwhile charity. 
Good
luck Erica from everyone at SNAP!
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Letterbox Library's New Year Catalogue
includes a special focus on disability in children's books. Letterbox Library
has for many years worked hard to source quality disability titles for children.
The New Year catalogue features our reviewers' best picks of the 'classics' as
well as many exciting new titles from the UK and abroad. Letterbox
Library (LL) is a children's booksellers and a not-for-profit social enterprise.
Our customers include schools, libraries, early years settings and individuals.
We have a long established reputation for sourcing children's books which celebrate
equality and diversity. A number of our books are imported and are hard to access
elsewhere. Our specialisms include:
Multicultural and non-sexist children's books
Books which explore personal and social issues
Books which feature groups of people traditionally under-represented in children's
literature, e.g.: different faith groups, disabled people, black/minority ethnic
communities, refugees Uniquely,
all of our books have been approved by an independent team of volunteer reviewers
which includes Ofsted inspectors, childminders, teachers, social workers, nursery
workers, parents and children.
Books
are carefully selected for their (1) inclusiveness (2) quality in art work and
storyline (3) strong child-appeal. Our reviewers come from a wide range of backgrounds
and include disabled children/adults.
Letterbox Library's New Year Catalogue
is the culmination of our research into the best disability titles available from
the UK and abroad. They also include books recommended by key disability organisations.
From old favourites- Seal Surfer, Mama Zooms to great new titles - Dan and Diesel,
Victoria's Day, there should be something here for everyone. | For
a (free) copy of our catalogue, please call 020 7503 4801 or e-mail at info@letterboxlibrary.com
Or, to view all of our books you can visit our website at www.letterboxlibrary.com
Please
quote 'SNAP Newsletter' when you contact us.

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Donate
Your Old Mobile For NAS | Vodafone
will will make a donation for each old mobile phone handed into them to the National
Autistic Society (NAS).
Vodafone has already recycled thousands of mobile
phones. In the period 2005-2006, the recycling scheme raised an amazing £578,000.
For more details, click below:
For
details of the NAS see: 
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Contact a Family Directory
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 | The
Contact a Family Directory 2007 is now available. The directory is written and
endorsed by the foremost medical authorities in the UK and abroad to ensure you
access to the most up-to-date and accurate information; | To
help you find information quickly and easily on Regional Genetic Centres, hospices
and other organisations which can assist in the management of a condition;
To
learn how disorders are inherited and whether they can be diagnosed pre-natally; Includes
articles on Patterns of Inheritance, Behavioural Phenotypes and Screening to improve
your knowledge of rare disorders for yourself or the families you work with; Since
2004, we have added over 200 pages to the directory without increasing the price. Also
available on the Internet ... Our
award winning website now includes a subscription version of The Contact a Family
Directory (which is updated every month). See: www.cafamily.org.uk/dirsubs.html
for more details. ...
and on CD-ROM The Contact a
Family Directory is also available on CD ROM via a subscription service. Paperback
Version costs £35.00 - 20% discount when buying 6 or more copies. Contact
a Family 209-211 City Road. London EC1V 1JN 020 7608 8700 www.cafamily.org.uk |